1. What are the expectations, experiences, and perspectives on preconception and prenatal genetic carrier testing programs and tests for cystic fibrosis, fragile X syndrome, hemoglobinopathies, and spinal muscular atrophy of adults and their reproductive partners, related family members, and health care providers, in terms of:
• accessing and deciding to undergo or offer testing
• the process of testing, including the communication, interpretation, and use of test results
• affecting people’s reproductive decision-making?