Funding Opportunity for Rare Disease Registry Improvement

Date: Thursday, March 14, 2024  
Time: 1:00 p.m. to 2:00 p.m. ET (free online event)

In March 2023, the Government of Canada announced the National Strategy for Drugs for Rare Diseases to help increase access to, and affordability of, effective treatments for these conditions. Part of the national strategy investment includes funding for CADTH-led initiatives to improve the collection and use of evidence to inform and support decision-making. One of these initiatives is to support efforts for improved evidence generation and value of real-world data from rare disease registries.

As part of these efforts, CADTH is launching a new funding opportunity for rare disease registry owners in Canada. This opportunity will be issued via a Request for Proposals (RFP) and invite rare disease registry holders to make submissions to receive funding to support quality improvement initiatives for their registries.  

For an overview of the RFP process, please plan to attend our 1-hour information session. You’ll have the opportunity to:

  • learn more about CADTH’s work related to rare disease registries
  • understand how to respond to the RFP for funding
  • ask questions during a live question and answer forum.

For more details about our work related to drugs for rare diseases, visit our website and subscribe to our eAlerts to be notified when the RFP opens.

Register Now